Living With Addisons - A Ben's Friends Patient Support Community

About LivingwithAddisons.org


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What is Livingwith Addisons.org?

 

Livingwith Addisons.org is a dedicated patient-to-patient support community for patients and families affected by Addisons. Livingwith Addisons.org is powered by BensFriends.org, a group of patient support communities for rare diseases, and is run by volunteer moderators who have been affected with Addison's Disease.

 

Who can join LivingwithAddisons.org?

 

If you or your family has been affected by Addison's Disease, consider LivingwithAddisons.org your second home. LivingwithAddisons.org, as well as the rest of BensFriends.org’s patient communities, is free for members to join.

 

What is Addisons Disease?

 

Addison's disease is a disorder that occurs when your body produces insufficient amounts of certain hormones produced by your adrenal glands. In Addison's disease, your adrenal glands produce too little cortisol and often insufficient levels of aldosterone as well. One way the body keeps itself in balance is by using chemical messengers called hormones to regulate various functions. ... In Addison's disease, called primary adrenal insufficiency, the adrenal glands don't make enough of a hormone called cortisol, or less often, a related hormone called aldosterone.

 

What is BensFriends.org?

 

In 2007, Ben Muñoz suffered a rare form of stroke caused by an Arterio-Veinous Malformation (AVM). He was unable to find the support he needed during the most difficult time, so he created an online support community AVMSurvivors.org to connect with others like him. AVMSurvivors.org led to the founding of BensFriends.org, driven to provide patient-to-patient support communities for people living with rare diseases.

 

BensFriends.org  is a network of patient communities for people living with rare diseases. Launched in November 2007, Bens Friends provides valuable patient support by creating and running compassionate, responsive communities. BensFriends.org maintains dozens of patient communities and has changed thousands of lives. Bens Friends is supported by donations from its principals and community.

 

You can learn more about BensFriends.org at http://www.bensfriends.org or watch one of our videos at http://www.youtube.com/BensFriendsVideos.